Expressing support for the designation of June 20, 2024, as "World FSHD Day".
Latest Action
Referred to the House Committee on Energy and Commerce.
Official Summary
Official summary has not been imported yet.
GovScope Watchdog™
AI Government Intelligence™House Resolution 1307 from the 118th Congress expresses support for designating June 20, 2024, as "World FSHD Day." The resolution aims to recognize and raise awareness about Facioscapulohumeral Muscular Dystrophy (FSHD), a genetic muscle disorder. The bill was referred to the House Committee on Energy and Commerce but did not advance further and is currently classified as failed or expired. No detailed legislative text or summary is available to provide additional specifics.
H.Res. 1307 sought to officially recognize June 20, 2024, as World FSHD Day to promote awareness of a specific muscular dystrophy, but the resolution did not pass and lacks detailed legislative provisions.
- The bill is a House resolution supporting the designation of a specific awareness day for FSHD.
- It was referred to the House Committee on Energy and Commerce on June 18, 2024.
- The bill did not progress beyond committee referral and is currently failed or expired.
['Individuals affected by Facioscapulohumeral Muscular Dystrophy (FSHD)', 'Advocacy groups and organizations focused on muscular dystrophy and rare diseases', 'Healthcare providers and researchers specializing in neuromuscular disorders']
['The resolution does not include funding or enforcement mechanisms, limiting direct impact.', 'Lack of detailed legislative text restricts clarity on implementation or follow-up actions.', 'As a non-binding resolution, it does not create legal obligations or policy changes.']
The bill was introduced in the House during the 118th Congress and referred to the Energy and Commerce Committee, which handles health-related legislation. It is a symbolic resolution rather than a statutory law, reflecting congressional support for awareness rather than regulatory action. The bill's failure to advance suggests limited legislative momentum or prioritization.
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['Raising awareness through an official designation day could increase public knowledge and support for FSHD research and patient services.', 'The resolution might encourage advocacy organizations to coordinate events or campaigns around the designated date.', 'Symbolic recognition may influence future legislative or funding initiatives related to muscular dystrophy.']
The absence of a full bill text and official summary limits transparency regarding specific provisions or intended actions beyond the designation of the awareness day. The resolution's non-binding nature means it does not impose new obligations or funding, which is typical for such symbolic measures. Monitoring committee actions and related legislative proposals could provide additional oversight opportunities.
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